The new Public Program of Data Analysis in Health Research and Innovation in Catalonia is in the height of the participatory and deliberative process in response to a parliamentary motion and the good will of the Department of Health.
The participatory and deliberative process has been articulated in three large distinct actions: a conference of structured discussions with experts, a conference of public information and a participatory process by means of contributions from all citizens. We see everything with a little more detail.
On July 5 a conference of structural discussions with 80 experts was held. The discussions focused on four major areas: public research; ethical principles; governance, transparency and sustainability; and safety and regulations. With the aim of making the ideas and reflections resulting from these different discussions available to all citizens, the contributions of the different discussions were collected and are public. We invite you to read the contributions that were made from here:
- Public Research
- Ethical Principles
- Governance, Transparency and Sustainability
- Safety and Regulations
A week later, on July 12, a conference of public information was held, in which the main contributions from the discussions on July 5 were presented. Among other aspects, those emphasized are the need for transparency and the issuing of accounts to be the basic principles throughout the process, along with the need to promote citizen participation. A video of the day can be seen here.
A participatory process through contributions that can be made from July 6- July 29 is now open. These contributions will be studied for their integration into the final program which will be presented this autumn.
The data analysis program in research and innovation will be permanently participatory. There is the understanding that scientific progress cannot be built without citizen participation. Establishing a triangle between scientists, politicians, and citizens is one of the great challenges of our society. Toni Dedéu, director of the AQuAS, is confident that the participatory and deliberative process will serve to build the best public program that we can do together.